A fundraising event held May 29 in honor of Tom Coleman raised more than $125,000 to support the Program for Neurology Research & Discovery’s stem-cell research on amyotrophic lateral sclerosis and other neural degenerative diseases.
The event, held at the Back Bay Bistro in Newport Beach, was originally planned for 150 people. But through word-of-mouth it grew to include more than 250 friends and associates of Mr. Coleman, 47, who was diagnosed with ALS in 2013.
The fundraising event, which included a keynote speech by Eva Feldman, M.D., Ph.D., was organized by Tom’s wife Ronnette Coleman, his business partner and co-founder of LC Automotive, Bill Lawrence, both of Costa Mesa, Calif., Mr. Coleman’s sister, Sue Gottschalk of Canton, Mich., and other friends.
“I am deeply touched by the wide support of our industry for Tom, his family and their desire to contribute to the research efforts of Dr. Feldman and the University of Michigan,” Mr. Lawrence said. “While Tom, his family and friends had worked tirelessly on planning this event, all those involved were taken back by not only the number of attendees, but by their generosity.”
Mr. Coleman is one of 30 patients who have received stem-cell injections in a first-of-its-kind clinical trial that has now reached Phase 2. In Phase 1 of the trial, the spinal cords of 15 patients including Mr. Coleman were injected with stem cells to determine whether the procedure was safe for humans. Phase 2 will add an additional 18 patients, each receiving up to 16 million stem cells — to determine the procedure’s efficacy – how well it works.
“It took a big effort from family and friends to pull this event together,” said Tom Coleman. “But our fundraising success would not have been possible without the strong support of Enterprise Rent-A-Car, PPG, LKQ Corp, The Platinum Group, Single Source, Caliber Collision Centers, CCC and many anonymous individual donors. I sincerely thank each of you for your participation and contribution.”
Tom and Ronnette Coleman have acknowledged that the research being done on ALS will not benefit their family directly, but they are committed to helping researchers find a cure for ALS and other neural degenerative diseases such as Alzheimer’s.
“I am so grateful to the Colemans and their friends and family who have supported our research at the University of Michigan,” Dr. Feldman said. “For the Colemans this is a profoundly selfless gesture that will hopefully benefit future generations who suffer from ALS and other horrific neurological disorders. The outpouring of support for Tom and Ronnette by their community of friends and associates is truly touching. It is clear that Tom’s impact has been far-reaching.
“It is humbling to see, and it inspires each and every one of us in the lab to never stop searching for a cure.”